Friday, May 22, 2009
Baja Fresh Fundraiser - Today!!!
Anyone who is in the Mesa area (Val Vista and Baseline) today can enjoy Baja Fresh and benefit Margaret. Print off this flyer and bring it with you when you order to have a percentage of today's proceeds go directly to Margaret's health fund. Happy Memorial Day!
Thursday, May 21, 2009
Cancer Clinic
Today I spent time at the Cancer Clinic getting my last dosage of Rituxin through IV. Rituxin is
not chemotherapy, but it is a medicine that is used for many cancers. I finally met someone
that was diagnosed with Mantle Cell -Non Hodgkin Lymphoma. The patient is a man that was
having his last dosage of chemo. It wasn't by chance that I was seated next to him. I talked
briefly to his sister or sister in law and found out that he had the same kind of cancer as me.
I gave them my phone number and I hope that they call --so that we can exchange information.
He wondered why I hadn't lost my hair. I asked my nurse how many people
in the clinic have mantle cell non hodgkins lymphoma and she said that in all the years of her
working there she had never met another patient that had it. It is very rare.
I wanted to tell him about the Burzynski Clinic but didn't feel like that was the time nor the
place to do it. If he calls and inquires then I will tell him what I am doing. I think each person
needs to be directed to the correct path for them. But, if I were him, I would certainly look into
what the Lord has inspired me to do. I feel so blessed and continue to KNOW that the Lord is
healing me. It's so exciting.
not chemotherapy, but it is a medicine that is used for many cancers. I finally met someone
that was diagnosed with Mantle Cell -Non Hodgkin Lymphoma. The patient is a man that was
having his last dosage of chemo. It wasn't by chance that I was seated next to him. I talked
briefly to his sister or sister in law and found out that he had the same kind of cancer as me.
I gave them my phone number and I hope that they call --so that we can exchange information.
He wondered why I hadn't lost my hair. I asked my nurse how many people
in the clinic have mantle cell non hodgkins lymphoma and she said that in all the years of her
working there she had never met another patient that had it. It is very rare.
I wanted to tell him about the Burzynski Clinic but didn't feel like that was the time nor the
place to do it. If he calls and inquires then I will tell him what I am doing. I think each person
needs to be directed to the correct path for them. But, if I were him, I would certainly look into
what the Lord has inspired me to do. I feel so blessed and continue to KNOW that the Lord is
healing me. It's so exciting.
Tuesday, May 19, 2009
Picture time
Today, Maria and Tate came over and Maria taught me how to put pictures on my blog.
So, I am trying it out to see if it works. She is walking me through it and making me do it
all by myself so that I will learn. This is our son James and his darling fiance named
Julie Stapley. He proposed in Sedona and gave her a beautiful shiny diamond ring. We're looking
forward to meeting her parents and family members on Saturday evening.
Larry had his hernia operation yesterday and is recuperating. Although he is still in a lot
of pain, he walked today. I gave him a sponge bath and shaved him with his electric razor.
He will probably be coming home tomorrow. I love Larry and am grateful to have had the
strength the last couple of days to go to Good Sam and visit and care for him. It's also been
a blessing to have had Maria and Tate over tonight. So now she expects me to put pictures
on occasionally. Oh boy...I guess I can do hard things.
Saturday, May 16, 2009
My Glass Jar
The other day, the door bell rang and there was Maria and her son Tate. Tate was so excited
about a handful of quarters that he held in his hand. He had been saving his money to buy
something special and finally decided on his own to give them to his Grandma Margaret to
buy pills. It was so sweet. I got a glass canning jar and put a label on it saying "Money For
Grandma". Tate put his money into the jar and gave me a big hug. So now, I have the jar in
the bookcase of our living room.
Then yesterday, I opened the door to go out and there was a card with a lovely anonymous
note and $150 towards my medicine. Then later that day, another person gave me $20
for pills. So, the jar is filling up. Every penny counts and it blesses my life as well as others
to give. I recognize that Heavenly Father is in control and is blessing me.
I also want to thank my family, especially Aaron and Andrea, for putting together the upcoming
Benefit "Italian Dinner", along with Lisa Tollefson, to raise more money in my behalf.
Blessings are pouring in and I feel of everyone's prayers and love.
Whenever I look at the glass jar, I think of friends and loved ones and how so many people
are sacrificing in my behalf. It touches my heart!
about a handful of quarters that he held in his hand. He had been saving his money to buy
something special and finally decided on his own to give them to his Grandma Margaret to
buy pills. It was so sweet. I got a glass canning jar and put a label on it saying "Money For
Grandma". Tate put his money into the jar and gave me a big hug. So now, I have the jar in
the bookcase of our living room.
Then yesterday, I opened the door to go out and there was a card with a lovely anonymous
note and $150 towards my medicine. Then later that day, another person gave me $20
for pills. So, the jar is filling up. Every penny counts and it blesses my life as well as others
to give. I recognize that Heavenly Father is in control and is blessing me.
I also want to thank my family, especially Aaron and Andrea, for putting together the upcoming
Benefit "Italian Dinner", along with Lisa Tollefson, to raise more money in my behalf.
Blessings are pouring in and I feel of everyone's prayers and love.
Whenever I look at the glass jar, I think of friends and loved ones and how so many people
are sacrificing in my behalf. It touches my heart!
Friday, May 15, 2009
There will also be a donation box for Margaret's Cancer Fund. Click HERE to learn more about the boutique.Tuesday, May 12, 2009
Monday, May 11, 2009
Oncologist Report
Great News! Dr. Kellogg, my oncologist, has officially documented that I am improving.
He measured the lymph glands and said that the largest one under the arm pit was at 3 cm and
now it is at 2 cm. He said the one in my neck is gone and the groin glands are also much smaller.
He said "You are definitely improving" and told me to keep up the "chemo" pills. (Which he and I
know that they are NOT chemo pills) I could tell that he was very surprized and is documenting
everything carefully. Dr. Kellogg has been in contact with a Dr. Miller, a specialist at the U of A
...and this is going to be a very interesting case study for them.
Dr. Kellogg also told me that my blood work looked very good. That means the white blood
cell count, etc. He said that my organs are all functioning well and that I am responding good
to the medicines.
So, tomorrow is Larry's surgery. I'm feeling better and ready to support him now with his
needs. The Lord is surely mindful of us and the timing is perfect. His surgery was suppose to be
months ago but the Lord told us to hold off and do it after Mother's Day. I'm sure glad we
listened.. as we would have done it right about the time that I was diagnosed and we could
have lost our business. Blessings are continuing to pour in!
He measured the lymph glands and said that the largest one under the arm pit was at 3 cm and
now it is at 2 cm. He said the one in my neck is gone and the groin glands are also much smaller.
He said "You are definitely improving" and told me to keep up the "chemo" pills. (Which he and I
know that they are NOT chemo pills) I could tell that he was very surprized and is documenting
everything carefully. Dr. Kellogg has been in contact with a Dr. Miller, a specialist at the U of A
...and this is going to be a very interesting case study for them.
Dr. Kellogg also told me that my blood work looked very good. That means the white blood
cell count, etc. He said that my organs are all functioning well and that I am responding good
to the medicines.
So, tomorrow is Larry's surgery. I'm feeling better and ready to support him now with his
needs. The Lord is surely mindful of us and the timing is perfect. His surgery was suppose to be
months ago but the Lord told us to hold off and do it after Mother's Day. I'm sure glad we
listened.. as we would have done it right about the time that I was diagnosed and we could
have lost our business. Blessings are continuing to pour in!
Friday, May 8, 2009
Motherhood and Family
With Mother's Day coming up, I was just thinking about how much I love my dear mother
and also how much I LOVE being a mother to such amazing and wonderful kids! I just
couldn't ask for better children..and I know that Larry feels the same way as me.
At this time in my life when my health has been down, their love and support has sustained me.
They have been so kind and helpful, along with their spouses...and it means the world to me.
They bring GREAT JOY! I love motherhood and being a grandmother to 8....soon to
be 11.....darling grand kids! I'm excited to be able to serve and help them with their needs.
Until then...they are just serving each other and helping out... where normally I would be
watching their little ones. I miss doing things for my family. But right now, I just have to
get well and be patient and those days will return. I love each of my wonderful and caring
children and family members!
Larry has been such a great support to me...and now with his surgery next week, well, I hope to
be able to serve him. It's his turn.
and also how much I LOVE being a mother to such amazing and wonderful kids! I just
couldn't ask for better children..and I know that Larry feels the same way as me.
At this time in my life when my health has been down, their love and support has sustained me.
They have been so kind and helpful, along with their spouses...and it means the world to me.
They bring GREAT JOY! I love motherhood and being a grandmother to 8....soon to
be 11.....darling grand kids! I'm excited to be able to serve and help them with their needs.
Until then...they are just serving each other and helping out... where normally I would be
watching their little ones. I miss doing things for my family. But right now, I just have to
get well and be patient and those days will return. I love each of my wonderful and caring
children and family members!
Larry has been such a great support to me...and now with his surgery next week, well, I hope to
be able to serve him. It's his turn.
Wednesday, May 6, 2009
Frustrating
I have been spending many many hours a day trying to get coverage on medications, and it can be
frustrating. I have 4 accordian files of information and so many different organizations to contact
and phone numbers, etc. Today, I'm worn out with the calls....but perhaps making some
headway...I don't know yet.
Actually, I have found a Desert Mountain Chapter that is working to donate $500 to my
healthcare. Also, maybe Co-Pay National will help with my $5000 yearly co-pay. Then, Cancer
Legal Resource Center may help with writing letters to get GlaxoSmithKline to donate Tykerb.
But, it doesn't look promising. But...I am still trying whenever possible to get financial help. I
want to give a BIG thank you to all of you that have donated to my care. You are wonderful!
frustrating. I have 4 accordian files of information and so many different organizations to contact
and phone numbers, etc. Today, I'm worn out with the calls....but perhaps making some
headway...I don't know yet.
Actually, I have found a Desert Mountain Chapter that is working to donate $500 to my
healthcare. Also, maybe Co-Pay National will help with my $5000 yearly co-pay. Then, Cancer
Legal Resource Center may help with writing letters to get GlaxoSmithKline to donate Tykerb.
But, it doesn't look promising. But...I am still trying whenever possible to get financial help. I
want to give a BIG thank you to all of you that have donated to my care. You are wonderful!
Monday, May 4, 2009
Yeah! Good news!
My Zolinza pills that are $100 a day are now covered! After much work, prayers and fasting, the
zolinza manufactures have decided to give me free pills through the end of the year. That will
help a lot. I was in tears when I received the call this morning. So now the rapimune and zolinza
are free.
The manufacturer that will not help at this time is the one that makes Tykerb. We have tried all
the avenues that we know except to send them lots of letters on a regular basis asking for
assistance. So, I'm going to work on that.
So, basically my health care is down to less than $5,600 a month. So, that is better!
I know that Heavenly Father is blessing me and will continue to work miracles in my behalf.
zolinza manufactures have decided to give me free pills through the end of the year. That will
help a lot. I was in tears when I received the call this morning. So now the rapimune and zolinza
are free.
The manufacturer that will not help at this time is the one that makes Tykerb. We have tried all
the avenues that we know except to send them lots of letters on a regular basis asking for
assistance. So, I'm going to work on that.
So, basically my health care is down to less than $5,600 a month. So, that is better!
I know that Heavenly Father is blessing me and will continue to work miracles in my behalf.
Sunday, May 3, 2009
Pink Lips...by larry Manning
What a surprize! I was sound asleep and Margaret woke me up to see her lips. They were like
pink pomegranites. Usually they blend in with her face. Last Thursday, we were discussing
Margaret's health and how she was tired and weak and had poor circulation. I remembered in
March, just prior to her diagnoses of cancer she was found to have hypothyroidism. At this
same appointment with the doctor they discovered the lump under her arm. The thyroid
problem was quickly forgotten and she was off to the Burzynski Clinic to treat the cancer. We
assumed that the weakness was all tied to the lymphoma. However, many of the symptoms that
she is exhibiting are not indicative to the cancer. She has low blood pressure, very poor
circulation, weak limbs, low pulse, cracks in the heels, pale lips, etc. While discussing her
condition, I reminded her that she was diagnosed with hypothyroidism and that she needed to
take some supplements for it. She started taking a product called "Thyroid Energy" and this
morning she woke up with pink lips. Her circulation seems better as well. So I kissed her and
went to her pill box and took some myself. They might help the poor circulation in my feet and
body as well.
pink pomegranites. Usually they blend in with her face. Last Thursday, we were discussing
Margaret's health and how she was tired and weak and had poor circulation. I remembered in
March, just prior to her diagnoses of cancer she was found to have hypothyroidism. At this
same appointment with the doctor they discovered the lump under her arm. The thyroid
problem was quickly forgotten and she was off to the Burzynski Clinic to treat the cancer. We
assumed that the weakness was all tied to the lymphoma. However, many of the symptoms that
she is exhibiting are not indicative to the cancer. She has low blood pressure, very poor
circulation, weak limbs, low pulse, cracks in the heels, pale lips, etc. While discussing her
condition, I reminded her that she was diagnosed with hypothyroidism and that she needed to
take some supplements for it. She started taking a product called "Thyroid Energy" and this
morning she woke up with pink lips. Her circulation seems better as well. So I kissed her and
went to her pill box and took some myself. They might help the poor circulation in my feet and
body as well.
Friday, May 1, 2009
Cherry Pie
I went to the foot doctor today because of an infection and needed some advice on what to do.
Then, before leaving he checked my pulse in my feet and noticed that I have very poor
circulation, especially on the left side. I told him that I have been feeling weak in my limbs and
he said that I need to go to my primary care doctor and get a vascular workup. So, on Monday, I
have an appointment. In the meantime, I have been limiting my walking and resting a lot. But, in
the midst of this, I received a yummy cherry pie from our neighbors with no sugar. It was so
nice and it picked up my spirits. I wasn't going to wait until after dinner nor until Larry got
home. I just cut me a piece and indulged...and it feels good to my tummy and spirit.
I just finished writing this and ...........the doorbell rang..................I thought I had enough
blessings for the day, but an angel just brought in dinner. I am so blessed....and Larry
is just driving up and I can serve him dinner and dessert!
Then, before leaving he checked my pulse in my feet and noticed that I have very poor
circulation, especially on the left side. I told him that I have been feeling weak in my limbs and
he said that I need to go to my primary care doctor and get a vascular workup. So, on Monday, I
have an appointment. In the meantime, I have been limiting my walking and resting a lot. But, in
the midst of this, I received a yummy cherry pie from our neighbors with no sugar. It was so
nice and it picked up my spirits. I wasn't going to wait until after dinner nor until Larry got
home. I just cut me a piece and indulged...and it feels good to my tummy and spirit.
I just finished writing this and ...........the doorbell rang..................I thought I had enough
blessings for the day, but an angel just brought in dinner. I am so blessed....and Larry
is just driving up and I can serve him dinner and dessert!
Thursday, April 30, 2009
Expensive Little Pills
Yesterday the UPS guy brought me some pills. One container had 5 pills (zolinza) that were over
$100 each. The other container had enough Tykerb pills for a month. They cost nearly $3,000.
I was just thinking that if a person donated $100 to my healthcare...it would give me one pill.
It's expensive, but so needed. These pills are working and saving my life! Rapamune pills
arrived today and they are free....donated by the manufacturer! Yeah! So helpful.
So today is a very special day for Larry and me. It's our 33rd Anniversary. We celebrated by
going out to dinner together. I'm looking forward to many more years together with him.
$100 each. The other container had enough Tykerb pills for a month. They cost nearly $3,000.
I was just thinking that if a person donated $100 to my healthcare...it would give me one pill.
It's expensive, but so needed. These pills are working and saving my life! Rapamune pills
arrived today and they are free....donated by the manufacturer! Yeah! So helpful.
So today is a very special day for Larry and me. It's our 33rd Anniversary. We celebrated by
going out to dinner together. I'm looking forward to many more years together with him.
Tuesday, April 28, 2009
A Wonderful Scripture
Last night, while doing some dishes, a scripture popped into my mind. So, I tried to find it with
Larry's help. It was awesome....just what we needed. You see, we have a problem in our lives at
this time...as most of you know, and that is we need a lot of money. So many people are donating
to my cause and have helped with the MHS Benefit Concert, and it's so wonderful, but I am
thinking about the future bills and how to pay the medical expenses month after month after
month. They all add up. We can't just rely on everyone on a long time basis. So, back to the
scripture. It's found in the Book of Mormon in Jacob 2:18-19. It gives us the answer on how to
get more money. It reads "But before ye seek for riches, seek ye for the kingdom of God. And
after ye have obtained a hope in Christ ye shall obtain riches, if ye seek them; and ye will
seek them for the intent to do good--to clothe the naked, and to feed the hungry, and to liberate
the captive, and administer relief to the sick and the afflicted." We hope that we
qualify- as we have hope in Christ- and we want to use the money to help the sick and the
afflicted, which is me right now. So, we are in the process of extending our business and will be
selling "EZ Coat Epozy" Floor Kits on line. We are trusting in the Lord that within a few months
we will be making money and that it won't be too long and we will be able to pay all of our own
bills. I know that we will be blessed by the Lord to accomplish this. In the meantime, we so
much appreciate all the help and donations and prayers in our behalf. The Lord is surely leading
us along and giving us answers to our prayers. By the way, My health is improving!
LOL,
Margaret
Larry's help. It was awesome....just what we needed. You see, we have a problem in our lives at
this time...as most of you know, and that is we need a lot of money. So many people are donating
to my cause and have helped with the MHS Benefit Concert, and it's so wonderful, but I am
thinking about the future bills and how to pay the medical expenses month after month after
month. They all add up. We can't just rely on everyone on a long time basis. So, back to the
scripture. It's found in the Book of Mormon in Jacob 2:18-19. It gives us the answer on how to
get more money. It reads "But before ye seek for riches, seek ye for the kingdom of God. And
after ye have obtained a hope in Christ ye shall obtain riches, if ye seek them; and ye will
seek them for the intent to do good--to clothe the naked, and to feed the hungry, and to liberate
the captive, and administer relief to the sick and the afflicted." We hope that we
qualify- as we have hope in Christ- and we want to use the money to help the sick and the
afflicted, which is me right now. So, we are in the process of extending our business and will be
selling "EZ Coat Epozy" Floor Kits on line. We are trusting in the Lord that within a few months
we will be making money and that it won't be too long and we will be able to pay all of our own
bills. I know that we will be blessed by the Lord to accomplish this. In the meantime, we so
much appreciate all the help and donations and prayers in our behalf. The Lord is surely leading
us along and giving us answers to our prayers. By the way, My health is improving!
LOL,
Margaret
Sunday, April 26, 2009
Thank you to all who helped with the Benefit Concert
The MHS Concert was fabulous! I really enjoyed the amazing and talented dancers! Then the
basketball competitions were really fun as well, and the adio sol patrol...and I loved the gorilla.
He even kissed my hand. Thank you to Jheri Glover and Diane Hale who did so much work! Also,
Calli Overstreet, Sandy Stones and Max Cox and.....the list goes on and on! Everyone who came
and paid money for tickets and other items...and those who worked there also...thank you so very
much from the bottom of my heart! Thanks for your support and prayers as well!
basketball competitions were really fun as well, and the adio sol patrol...and I loved the gorilla.
He even kissed my hand. Thank you to Jheri Glover and Diane Hale who did so much work! Also,
Calli Overstreet, Sandy Stones and Max Cox and.....the list goes on and on! Everyone who came
and paid money for tickets and other items...and those who worked there also...thank you so very
much from the bottom of my heart! Thanks for your support and prayers as well!
Thursday, April 23, 2009
Lumps are going down! My doctor examined my lymph glands and reported that many are
shrinking and flattening out. Yeah! I'm constantly feeling the glands in my elbow joints as a way
of measuring how I am doing. It's funny but some of my friends started checking theirs as well.
Larry and I are busy getting some of the paintings framed to sell at the benefit concert. We have
them in our living room in different frames. The pictures look so beautiful! We were blessed to
get money donated to help us order some pictures. That really helped out a lot. Thank you to
everyone who blesses my life each day. I have to admit....I am totally spoiled!
shrinking and flattening out. Yeah! I'm constantly feeling the glands in my elbow joints as a way
of measuring how I am doing. It's funny but some of my friends started checking theirs as well.
Larry and I are busy getting some of the paintings framed to sell at the benefit concert. We have
them in our living room in different frames. The pictures look so beautiful! We were blessed to
get money donated to help us order some pictures. That really helped out a lot. Thank you to
everyone who blesses my life each day. I have to admit....I am totally spoiled!
Tuesday, April 21, 2009
Monday, April 20, 2009
Overcome with appreciation
Thank you to all of my dear family and friends! I deeply appreciate your prayers, love and
donations. This Saturday, Jheri Glover is hosting a special benefit "Night of Entertainment" at
MHS for me as well as for Christian and Stephanie. It's so nice of her and of all those that are
giving of their time and means to help us out.
Today, I was driving home from an appointment and I passed a beggar on the corner. He was
holding a sign and asking for money. I realized that we are all beggers... especially me. At this
time in my life I have to have money for my medicine in order to get well. So, basically I am
begging for help. Maybe in a sense we all beg for God's mercy or for others to help us out at
times. It is humbling but I truly appreciate all that each of you have done and are doing for me!
Most of all, I am thankful to my Heavenly Father for His constant outpouring of love and tender
mercies toward me. I am so happy. I trust in God and know that He is tenderly watching over
me and that He loves me. I am very content and trust that He is making me well.
donations. This Saturday, Jheri Glover is hosting a special benefit "Night of Entertainment" at
MHS for me as well as for Christian and Stephanie. It's so nice of her and of all those that are
giving of their time and means to help us out.
Today, I was driving home from an appointment and I passed a beggar on the corner. He was
holding a sign and asking for money. I realized that we are all beggers... especially me. At this
time in my life I have to have money for my medicine in order to get well. So, basically I am
begging for help. Maybe in a sense we all beg for God's mercy or for others to help us out at
times. It is humbling but I truly appreciate all that each of you have done and are doing for me!
Most of all, I am thankful to my Heavenly Father for His constant outpouring of love and tender
mercies toward me. I am so happy. I trust in God and know that He is tenderly watching over
me and that He loves me. I am very content and trust that He is making me well.
Saturday, April 18, 2009
Last Few Days
Since starting the Rituxin, I haven't been feeling too great. I am not having any reactions to the
medicine, but have been very tired...so I take lots of naps. When starting a new medicine it is
normal to have this happen as it is attacking the cancer cells. Some of them get swollen and then
will flatten out later. I hope to get feeling better soon. Larry and I are going to the Hope Concert
for Christian and Stephanie Nielson tonight. There is no way I would miss it. Life is wonderful!
medicine, but have been very tired...so I take lots of naps. When starting a new medicine it is
normal to have this happen as it is attacking the cancer cells. Some of them get swollen and then
will flatten out later. I hope to get feeling better soon. Larry and I are going to the Hope Concert
for Christian and Stephanie Nielson tonight. There is no way I would miss it. Life is wonderful!
Thursday, April 16, 2009
Personal Revelation
Today I went to Dr. Kellogg's office for a 4 hour treatment of Rituxin. I met a few people that
inquired of my illness. I told them what I could and of Dr. Burzynski. One of the lady's asked
when I was going to lose my hair. I told her that I wasn't. The head nurse explained to us that
Rituxin is a monoclonol antibody, and not chemotherapy.
I realize that Dr. Burzynski is not for everyone. For some people chemo or radiation may help
them. Others may be healed by just going the natural food and herb path. The most important
thing that I am realizing is the importance of personal revelation. Whatever our trials in life may
be... whether spiritual, physical, emotional, etc., it is so important that we are in tune with the
Lord and He will bless us according to our desires and His will. But, he wants us to ask in faith
and trust Him. I am so grateful that I know what is wrong with me and have found out the
direction I need to take. It's such a blessing to have our own liahonas and to be able to receive
personal revelation in our lives!
inquired of my illness. I told them what I could and of Dr. Burzynski. One of the lady's asked
when I was going to lose my hair. I told her that I wasn't. The head nurse explained to us that
Rituxin is a monoclonol antibody, and not chemotherapy.
I realize that Dr. Burzynski is not for everyone. For some people chemo or radiation may help
them. Others may be healed by just going the natural food and herb path. The most important
thing that I am realizing is the importance of personal revelation. Whatever our trials in life may
be... whether spiritual, physical, emotional, etc., it is so important that we are in tune with the
Lord and He will bless us according to our desires and His will. But, he wants us to ask in faith
and trust Him. I am so grateful that I know what is wrong with me and have found out the
direction I need to take. It's such a blessing to have our own liahonas and to be able to receive
personal revelation in our lives!
Wednesday, April 15, 2009
Singing
This afternoon I started getting concerned about having enough money to stay alive and pay for
the medicine from the Burzynski Clinic that costs $4,800 a month. So many people have been
very generous and donated money to my fund. I realize that there is a benefit concert coming up
on April 25th at MHS and I am sure that will help financially. But what about paying for the
medicines the following month and the next month after that...? Larry and I are working hard to
order prints of our two sons paintings, so we can sell them. We are also preparing to offer EZ Do-it-yourself
epozy garage coatings to sell via the internet. We hope to make more money with our business
to be able to pay our own medical bills. I found myself lying on the the couch tonight singing a
song of comfort. It is one of my favorite primary songs.
"The Lord commanded Nephi to go and build a boat
Nephi's older brothers believed it could not float
Laughing and mocking, they said he should not try,
Nephi was courageous, this was his reply--
I will go, I will do...the things the Lord commands,
I know the Lord provides a way, He wants me to obey.
I will go, I will do...the things the Lord commands,
I know the Lord provides a way, He wants me to obey."
The song brought comfort to my heart and a big smile on my face. I know that the Lord has
commanded me to be well. He provided the way to be healed through the Burzynski Clinic and I
know that He will provide a way to afford to get the medicine monthly. I know that we will be
guided by the Spirit and it will all work out.
the medicine from the Burzynski Clinic that costs $4,800 a month. So many people have been
very generous and donated money to my fund. I realize that there is a benefit concert coming up
on April 25th at MHS and I am sure that will help financially. But what about paying for the
medicines the following month and the next month after that...? Larry and I are working hard to
order prints of our two sons paintings, so we can sell them. We are also preparing to offer EZ Do-it-yourself
epozy garage coatings to sell via the internet. We hope to make more money with our business
to be able to pay our own medical bills. I found myself lying on the the couch tonight singing a
song of comfort. It is one of my favorite primary songs.
"The Lord commanded Nephi to go and build a boat
Nephi's older brothers believed it could not float
Laughing and mocking, they said he should not try,
Nephi was courageous, this was his reply--
I will go, I will do...the things the Lord commands,
I know the Lord provides a way, He wants me to obey.
I will go, I will do...the things the Lord commands,
I know the Lord provides a way, He wants me to obey."
The song brought comfort to my heart and a big smile on my face. I know that the Lord has
commanded me to be well. He provided the way to be healed through the Burzynski Clinic and I
know that He will provide a way to afford to get the medicine monthly. I know that we will be
guided by the Spirit and it will all work out.
Tuesday, April 14, 2009
Medicine Approved
Yeah! Finally, my insurance approved the Rituxin medicine. Now I can go to Dr. Kellogg and get
my IV treatments that I need. So, they will begin this week and will be repeated for about 6
weeks, then off for 6 months. Everything is moving along as planned now and I am getting into a
regular schedule with the medicines...my energy is high and life is good! Another blessing is that a
couple in our ward offered money towards getting some canvas prints of our sons paintings so that
we can sell them at the benefit concerts. Where do all these blessings come from? I know...do you?
my IV treatments that I need. So, they will begin this week and will be repeated for about 6
weeks, then off for 6 months. Everything is moving along as planned now and I am getting into a
regular schedule with the medicines...my energy is high and life is good! Another blessing is that a
couple in our ward offered money towards getting some canvas prints of our sons paintings so that
we can sell them at the benefit concerts. Where do all these blessings come from? I know...do you?
Monday, April 13, 2009
Pills and Bills
It's incredible to me how expensive little pills cost. I am on 3 different kinds that are very costly.
(Rapamune, Zolinza and Tykerb) They cost thousands of dollars a month due to
research costs. My insurance doesn't cover them for mantle cell lymphoma cancer. But those
are the drugs that are effective for me. I am on them and already some of the tumors are
disappearing and others are flattening out. I have been on-line for days contacting the
manufacturers of these drugs and have filled out forms to apply for free medicine. The
companies like to have people use their drugs so that they can find out what other illnesses can
be cured with them. The medicines that I can't get free are those that are sold at the Burzynski
clinic. The "miracle drug" is well over $4,000 a month. It is the first group of pills started and
the last ones I will get off of. But, really, it comes down to pills and bills for awhile.
(Rapamune, Zolinza and Tykerb) They cost thousands of dollars a month due to
research costs. My insurance doesn't cover them for mantle cell lymphoma cancer. But those
are the drugs that are effective for me. I am on them and already some of the tumors are
disappearing and others are flattening out. I have been on-line for days contacting the
manufacturers of these drugs and have filled out forms to apply for free medicine. The
companies like to have people use their drugs so that they can find out what other illnesses can
be cured with them. The medicines that I can't get free are those that are sold at the Burzynski
clinic. The "miracle drug" is well over $4,000 a month. It is the first group of pills started and
the last ones I will get off of. But, really, it comes down to pills and bills for awhile.
Sunday, April 12, 2009
Healing
Larry and I were reading scriptures this
morning and we read about the man that had palsy
(paralysis). Jesus was in his house and it was very crowded with followers, so his
friends lowered him down after removing part of the roof. Jesus healed him because
of his great faith. He told him to take up his bed and walk. Faith is trusting God
combined with action. I love it because this man and his friends did everything
they could to obtain the healing.
I have friends like this man that had the palsy. My friends and family are helping
me to pay for huge medical bills and are praying with great faith. I know that my
healing is coming about. My tumors are already flattening out and some are gone.
It's strange but true. Thank you everyone! It is truly because of my faith and the
faith of others that I will be healed..as I was promised!
This beautiful Easter day, I am grateful for the atonement. Not only did Jesus
make it possible for us to be resurrected, and also be forgiven of our sins, but he
also made it possible for us to be healed of our sicknesses. He suffered for those
things as well! Truly, all of our problems are answered through the atonement! I'm
thankful to God for his mercy to me.
morning and we read about the man that had palsy
(paralysis). Jesus was in his house and it was very crowded with followers, so his
friends lowered him down after removing part of the roof. Jesus healed him because
of his great faith. He told him to take up his bed and walk. Faith is trusting God
combined with action. I love it because this man and his friends did everything
they could to obtain the healing.
I have friends like this man that had the palsy. My friends and family are helping
me to pay for huge medical bills and are praying with great faith. I know that my
healing is coming about. My tumors are already flattening out and some are gone.
It's strange but true. Thank you everyone! It is truly because of my faith and the
faith of others that I will be healed..as I was promised!
This beautiful Easter day, I am grateful for the atonement. Not only did Jesus
make it possible for us to be resurrected, and also be forgiven of our sins, but he
also made it possible for us to be healed of our sicknesses. He suffered for those
things as well! Truly, all of our problems are answered through the atonement! I'm
thankful to God for his mercy to me.
Saturday, April 11, 2009
Lots of Energy
I woke up very early this morning with so much energy. After mopping the floors, organizing
music, shopping at Sam's Club and cleaning off patio furniture, etc. we went to lunch at the
Landmark Restaurant with Larry's parents. Larry especially enjoyed the bread pudding! My
brother, David and his wife Gayle had flown in from California to visit me and my brother
Stephen who is in the hospital. We all went to Barrow's Neurological Institute to visit Stephen
and his faithful wife Mary who stays with him so much of the time. While driving home, we saw a
double full rainbow up in the sky. It reminded me that God keeps His promises. We all decided
to go out for dinner at a little Asian Restaurant that I didn't even know existed. Great food and
fun times with my family! David and Gayle are hilarious and never lack for something interesting
to say. Then, on the way home I could hardly stop laughing as we talked about some funny
family memories. What a great day!
music, shopping at Sam's Club and cleaning off patio furniture, etc. we went to lunch at the
Landmark Restaurant with Larry's parents. Larry especially enjoyed the bread pudding! My
brother, David and his wife Gayle had flown in from California to visit me and my brother
Stephen who is in the hospital. We all went to Barrow's Neurological Institute to visit Stephen
and his faithful wife Mary who stays with him so much of the time. While driving home, we saw a
double full rainbow up in the sky. It reminded me that God keeps His promises. We all decided
to go out for dinner at a little Asian Restaurant that I didn't even know existed. Great food and
fun times with my family! David and Gayle are hilarious and never lack for something interesting
to say. Then, on the way home I could hardly stop laughing as we talked about some funny
family memories. What a great day!
Friday, April 10, 2009
Thomas' Art Picture
Just weeks before Thomas left on his mission, I asked him to finish a large 4 x 5 foot acrylic
painting of the Arizona Temple. He had kind of given up on it and left it unfinished in the back
room. I told him that all I wanted was for him to finish that beautiful painting before he left. So,
he got out his brushes and finished it for his mother. I love the painting. It hangs on our living
room wall and has now been framed. It's beautiful. This is the second Arizona Temple painting
he has done. After being in the mission field only a few weeks, he learned of my illness. He
wrote that he would like to do something for me besides pray. We asked him if we could sell the
prints of his paintings and donate the money to my health fund. He is more than happy to do
that and feels that he is helping...which he is. So, we are ordering some canvas prints of 3 of his
paintings and one of James' paintings as well to sell at the upcoming benefit concerts. I treasure
these pictures that hang on my walls and hope that others will find joy in them as well. I look up
at the large Arizona Temple picture and just think of Thomas and can see him painting. I think
of our eternal family and how dear each on is to me. I am looking forward to attending the
temple soon.
painting of the Arizona Temple. He had kind of given up on it and left it unfinished in the back
room. I told him that all I wanted was for him to finish that beautiful painting before he left. So,
he got out his brushes and finished it for his mother. I love the painting. It hangs on our living
room wall and has now been framed. It's beautiful. This is the second Arizona Temple painting
he has done. After being in the mission field only a few weeks, he learned of my illness. He
wrote that he would like to do something for me besides pray. We asked him if we could sell the
prints of his paintings and donate the money to my health fund. He is more than happy to do
that and feels that he is helping...which he is. So, we are ordering some canvas prints of 3 of his
paintings and one of James' paintings as well to sell at the upcoming benefit concerts. I treasure
these pictures that hang on my walls and hope that others will find joy in them as well. I look up
at the large Arizona Temple picture and just think of Thomas and can see him painting. I think
of our eternal family and how dear each on is to me. I am looking forward to attending the
temple soon.
Thursday, April 9, 2009
Life is Good
I went to my Oncologist today, ready for the IV treatment of rituxin...but didn't receive it due to
the insurance company not giving the approval yet. So, it will probably begin next week. Dr.
Kellogg is very nice and willing to do what he can to help me out. The waiting room was full of
cancer patients and I am grateful that I have my hair and that my medications don't cause
severe side effect. It was also very nice to have my loving husband at my side during this
difficult time. Larry actually went to see his dermatologist today and has a few operations
scheduled for the next few weeks. Surgery on his hand and nose for squeemish cell cancer and
then an incisional hernia repair on his entire abdomen sometime in May. So, we are helping
each other and leaning more on one another. It's a good thing.
The last couple of days I wasn't feeling too good. It was such a treat to enjoy some yummy soups
that a dear friend brought in. Dinner arrived just in time to feed James, his girlfriend and us.
Then tonight we had some more. Oh, it was sooo delicious. I'm so happy that the Lord is with
Larry and me during our trials. I am trying to study my scriptures more diligently and find so
much strength from them. I have found that personal revelation pours in during this time and I
need to always have a paper and pen available to write things down. Often, the inspiration has
nothing to do with what I am reading. The Lord is taking care of my every need and more. He is
wonderful! In one of the blessings that I received, I was told to read my personal scriptures for
at least an hour a day. I'm so glad the Lord asked me to do that because I need the spirit to
guide me. Dont we all.
the insurance company not giving the approval yet. So, it will probably begin next week. Dr.
Kellogg is very nice and willing to do what he can to help me out. The waiting room was full of
cancer patients and I am grateful that I have my hair and that my medications don't cause
severe side effect. It was also very nice to have my loving husband at my side during this
difficult time. Larry actually went to see his dermatologist today and has a few operations
scheduled for the next few weeks. Surgery on his hand and nose for squeemish cell cancer and
then an incisional hernia repair on his entire abdomen sometime in May. So, we are helping
each other and leaning more on one another. It's a good thing.
The last couple of days I wasn't feeling too good. It was such a treat to enjoy some yummy soups
that a dear friend brought in. Dinner arrived just in time to feed James, his girlfriend and us.
Then tonight we had some more. Oh, it was sooo delicious. I'm so happy that the Lord is with
Larry and me during our trials. I am trying to study my scriptures more diligently and find so
much strength from them. I have found that personal revelation pours in during this time and I
need to always have a paper and pen available to write things down. Often, the inspiration has
nothing to do with what I am reading. The Lord is taking care of my every need and more. He is
wonderful! In one of the blessings that I received, I was told to read my personal scriptures for
at least an hour a day. I'm so glad the Lord asked me to do that because I need the spirit to
guide me. Dont we all.
Tuesday, April 7, 2009
Home from Houston
It's great to be home. Maria and I arrived home on Saturday night. I've just
been slow in writing and trying to adjust to my new medications and home life. Larry has been
sick with a nasty cold and sore throat. We have been sleeping in different rooms and I miss
being with him. We give each other air hugs. I got to enjoy watching conference in our family
room with Larry and Joseph and Christina.
I think that I have the most awesome family in the world. I feel so loved and cared for. I want
everyone to feel that way. I think of some people that struggle and don't have support systems
and my heart aches for them. But, the greatest support system is from God. I feel of His love
for me and His loving arms wrapped around me. I feel peace and a calmness inside knowing that
He cares. We are all His children, of course He is there for each of us.
I have an organized schedule of pills that I take. I take 33 pills a day. It's actually more than
Larry takes. Getting good at swallowing pills. Most are amino pills others are for specific
purposes. The Sodium phenylbutyrate is to decrease the size of the tumors. Tykerb is to target
my Her-2 receptors. This medicine stops messages from being sent to cancer cells that tell
them to grow. So, I am diligent about doing what the doctor tells me to do. This Thursday, I
meet with my oncologist and will start another medicine through the IV to target my CD20 that
was found. What a blessing to know what I have wrong with me and to have medicines to help.
At the same time, I am on a very healthy diet. Lots of greens, very little meat if any. No red
meat. A variety of fruits and vegetables...wheat grass..xango mangostein, sunrider products,
essiac tea, lemon water, apricot kernels...etc.
Basically, I've been told that this particular illness is caused by chemicals or genetics. My
brother, Stephen has had a health problem that he is dealing with. They are still trying to
discover if he has lymphoma as well. They really don't know what he has. So....I have a list of
people that I am praying for and I remember to include myself. Thank you
for caring, praying, donating time or money or both to my cause. I really do appreciate all you
do for me and I need your help. We each have our own individual trials that help us to grow and
draw closer to God. Like one of my friends said to me, "It's just a test".
been slow in writing and trying to adjust to my new medications and home life. Larry has been
sick with a nasty cold and sore throat. We have been sleeping in different rooms and I miss
being with him. We give each other air hugs. I got to enjoy watching conference in our family
room with Larry and Joseph and Christina.
I think that I have the most awesome family in the world. I feel so loved and cared for. I want
everyone to feel that way. I think of some people that struggle and don't have support systems
and my heart aches for them. But, the greatest support system is from God. I feel of His love
for me and His loving arms wrapped around me. I feel peace and a calmness inside knowing that
He cares. We are all His children, of course He is there for each of us.
I have an organized schedule of pills that I take. I take 33 pills a day. It's actually more than
Larry takes. Getting good at swallowing pills. Most are amino pills others are for specific
purposes. The Sodium phenylbutyrate is to decrease the size of the tumors. Tykerb is to target
my Her-2 receptors. This medicine stops messages from being sent to cancer cells that tell
them to grow. So, I am diligent about doing what the doctor tells me to do. This Thursday, I
meet with my oncologist and will start another medicine through the IV to target my CD20 that
was found. What a blessing to know what I have wrong with me and to have medicines to help.
At the same time, I am on a very healthy diet. Lots of greens, very little meat if any. No red
meat. A variety of fruits and vegetables...wheat grass..xango mangostein, sunrider products,
essiac tea, lemon water, apricot kernels...etc.
Basically, I've been told that this particular illness is caused by chemicals or genetics. My
brother, Stephen has had a health problem that he is dealing with. They are still trying to
discover if he has lymphoma as well. They really don't know what he has. So....I have a list of
people that I am praying for and I remember to include myself. Thank you
for caring, praying, donating time or money or both to my cause. I really do appreciate all you
do for me and I need your help. We each have our own individual trials that help us to grow and
draw closer to God. Like one of my friends said to me, "It's just a test".
Monday, April 6, 2009
Friday, April 3, 2009
Come What May and Love It-Part 2
After much prayer and fasting on the part of so many loved ones, as well as a tremendous amount of research from family, the Lord let me know that it was His desire for me to go to Houston, Texas to see Dr. Burzynski. Peace poured into my mind and heart and I knew without a shadow of a doubt that it was the path to take. But, it is so expensive and I don't have the money. How would it be possible and in such a hard economic time? But, when the Lord gives a commandment, He always provides a way. I was praying for guidance and for financial help, when I received a phone call and was told to give someone a call. It was within a few days that some wonderful people, of which I can't disclose their names as they swore me to secrecy, donated a good amount of money to my cause. That money as well as the money so lovingly offered from other loving people combined to make enough money to pay for the initial visit and expenses. We were also fortunate to be accepted by "Positive Impact" which is 501 C3 organization which makes it possible for all donations to be tax deductible.
Then, Chase and Tricia C. called and offered us to stay at their home. They picked us up at the airport at midnight last Sunday night and have provided a beautiful place for us to stay. They have a guest room and a private bathroom for us as well. And to top it off, they have let us use their car and their GPS to get around. Chase gets rides to and from medical school.
Larry stayed the first two nights and went to the initial doctor's appointment with me. Then he had to return home to run the business. Maria has been such a sweetheart and has been here the whole week. She left her son Tate, which is a hard thing to do.
Each day at the clinic they have run different tests, started new medications, given seminars, etc. We have had so many experiences, including a near accident, getting to see the Gulf of Mexico, and hanging around the house with me being sick due to a reaction to the medicine called rapimune. Driving the freeways is sometimes exhausting especially when we get lost. It's so wonderful to have family and friends that love me at this time.
About the Burzynski Clinic...I knew that this is where I was to receive medical treatment well before arriving here. But again, the Spirit testified to me when arriving the first day that I was at the right place for me.
Here's a little schedule of what has happened each day:
Sunday, March 30th-arrived at midnight at airport. Went to the Campbell's home in Pearland, Texas
Monday, march 31st-Went to the clinic and met Dr. Burzyinski, did genetic blood work, attended a very informative seminar, had a near fatal accident but we were protected.
Tuesday, April Fools Day-Took Larry to the airport, went to Doctor's appointment. Started on Dr. Burzyinski's miracle drug which is called Sodium Phenylbutyrate (PB) which is his oral version of antineoplastons. On the way home from the clinic we stopped at the presidential monument which was off the side of the freeway and got pictures. Tricia made us a very healthy and delicious quinoa salad.
Wed. April 2-Got lost, went to the clinic and started Amino Care and Brain Longevity supplements as well as Zolinza. We drove to Galveston and enjoyed walking along the beach of the Gulf of Mexico, and getting a natural foot massage in the sand! Tricia made us delicious fish taco's for dinner. What a treat.
Thurs, April 3-Had a nutrition class where they told us that people with lymphoma have an over reactive immune system. I need to avoid chlorine in my bath water as well as avoiding any chemicals, sprays, etc. They started me on rapimune of which I had an allergic reaction and got very sick. I was so weak and achy. I Couldn't do anything until 12:30 at night, but just flop on beds and stuff. Maria was busy massaging me. Maria made a delicious tortillas soup for dinner. Yummy! We had some real miracles again today. Dr. Kellogg in Arizona has agreed to continue me as his patient and work under the prescribed care of Dr. Burzynski! What a blessing. He will perform the intravenous treatments of Rituxin off and on for the next 3 years. Although I was so sick, it was the highlight of my day to talk to Jonathan/Carrie and their 4 children through the webcam. It was fun to see the kids faces and talk to everybody.
Friday, April 4th-We have been slow this morning as I have been recuperating. We will be leaving for the clinic soon.
Just know that Heavenly Father loves to bless us all! I'm overwhelmed with the blessings that continue to pour in to my life. Miracles never cease!
Then, Chase and Tricia C. called and offered us to stay at their home. They picked us up at the airport at midnight last Sunday night and have provided a beautiful place for us to stay. They have a guest room and a private bathroom for us as well. And to top it off, they have let us use their car and their GPS to get around. Chase gets rides to and from medical school.
Larry stayed the first two nights and went to the initial doctor's appointment with me. Then he had to return home to run the business. Maria has been such a sweetheart and has been here the whole week. She left her son Tate, which is a hard thing to do.
Each day at the clinic they have run different tests, started new medications, given seminars, etc. We have had so many experiences, including a near accident, getting to see the Gulf of Mexico, and hanging around the house with me being sick due to a reaction to the medicine called rapimune. Driving the freeways is sometimes exhausting especially when we get lost. It's so wonderful to have family and friends that love me at this time.
About the Burzynski Clinic...I knew that this is where I was to receive medical treatment well before arriving here. But again, the Spirit testified to me when arriving the first day that I was at the right place for me.
Here's a little schedule of what has happened each day:
Sunday, March 30th-arrived at midnight at airport. Went to the Campbell's home in Pearland, Texas
Monday, march 31st-Went to the clinic and met Dr. Burzyinski, did genetic blood work, attended a very informative seminar, had a near fatal accident but we were protected.
Tuesday, April Fools Day-Took Larry to the airport, went to Doctor's appointment. Started on Dr. Burzyinski's miracle drug which is called Sodium Phenylbutyrate (PB) which is his oral version of antineoplastons. On the way home from the clinic we stopped at the presidential monument which was off the side of the freeway and got pictures. Tricia made us a very healthy and delicious quinoa salad.
Wed. April 2-Got lost, went to the clinic and started Amino Care and Brain Longevity supplements as well as Zolinza. We drove to Galveston and enjoyed walking along the beach of the Gulf of Mexico, and getting a natural foot massage in the sand! Tricia made us delicious fish taco's for dinner. What a treat.
Thurs, April 3-Had a nutrition class where they told us that people with lymphoma have an over reactive immune system. I need to avoid chlorine in my bath water as well as avoiding any chemicals, sprays, etc. They started me on rapimune of which I had an allergic reaction and got very sick. I was so weak and achy. I Couldn't do anything until 12:30 at night, but just flop on beds and stuff. Maria was busy massaging me. Maria made a delicious tortillas soup for dinner. Yummy! We had some real miracles again today. Dr. Kellogg in Arizona has agreed to continue me as his patient and work under the prescribed care of Dr. Burzynski! What a blessing. He will perform the intravenous treatments of Rituxin off and on for the next 3 years. Although I was so sick, it was the highlight of my day to talk to Jonathan/Carrie and their 4 children through the webcam. It was fun to see the kids faces and talk to everybody.
Friday, April 4th-We have been slow this morning as I have been recuperating. We will be leaving for the clinic soon.
Just know that Heavenly Father loves to bless us all! I'm overwhelmed with the blessings that continue to pour in to my life. Miracles never cease!
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