Today I went to my oncologist who is working hand in hand with Dr. Burzynski.
It was very enlightening.
First, the pet/ct scan actually did show some improvement. The report reads "There has been
marked interval improvement in the PET-CT funsion study with resolution of hypermetabolic
adenopathy in the mediastinum, axillaas, abdomen, and pelvis. Single mildly prominent right
axillary lymph node is demonstrated showing minimal low level metabolic activity.
Otherwise stable PET_CT fusion exam." In the chest the largest lymph node is 1.2 compared to
1.8 on the prior exam.
So, I am really happy about that. At the Burzynski Clinic they said that the pet/ct scan reading
was pretty much the same as the one in January. I think they were more concerned about the
rise in the her2. (Which is a protein that the cancer over expresses)
But, steps are being taken to lower the her2..... and my medicine is costing twice as much as a
result.
Oh well. Life is worth it and I will live and get all better.
I was pleased that all my blood work came back just right and my organs are functioning well.
Also, my echo cardiogram came back within normal range. (A test that tells how the heart is doing)
But, please continue to keep me in your prayers because I know that God hears and answers the
prayers of the faithful and I need all the prayers that I can get. My nephew Brent Thomas also
needs our prayers as he was diagnosed with breast cancer last week and will be having an
operation this week. He is a wonderful young man and is married and has children. He is the
4th in our family with cancer.
We sure had a nice Father's Day with most of the family here. We also celebrated Larry's
birthday a little early and he got his cheesecake. I enjoyed my blueberry ice-cream from Ocean
Blue (that is made with fructose..that I can have)
I'm enjoying my scripture study, prayer, singing the hymns and meditating. I certainly derive
much strength from doing these things as they bring me closer to the Lord and bring the Spirit
into my life!
Tuesday, June 22, 2010
Monday, June 7, 2010
Back from the Clinic
I recently returned from the Burzynski Clinic in Houston and have to make changes in my
medications. I found out that the cancer has stayed the same size as the last visit and pt/scan.
So, that wasn't good news. Dr. Burzynski said that they will be increasing the tykerb and
rapimune and that I will be stopping the zolinza medication. In reviewing the gene marker tests,
they determined that the cancer is over expressing her2 and that the levels have increased. The
medicine changes should take care of it. That is why I go in every 3 months...to have the
medicines adjusted and to have the doctors talk with me in detail about my health. So, it was a
good visit. I need to get a echo cardiogram and find out how my heart is doing as well. I feel in
good hands.
The biggest concern is one that I don't need to worry about....MONEY. The tykerb medicine is
the one that we don't get free from the manufacturer, and now I need to double the amount that
I take. So, it cost double the money. But, I know that the Lord will provide and that my job is to
take the pills and not be over concerned about the money or size of the tumors. Actually, the
doctor said that I am looking very good.
At first, after hearing that the tumors hadn't shrunk more, I started to be a little concerned. But,
then I prayed and got the reassurance from the Lord that all will be well and not to worry about
it. I know in my heart that everything will work out. my source of strength and has been with me
throughout this whole cancer adventure. I also know that through trials, great blessings are
received. Everything is going to work out as promised:)
medications. I found out that the cancer has stayed the same size as the last visit and pt/scan.
So, that wasn't good news. Dr. Burzynski said that they will be increasing the tykerb and
rapimune and that I will be stopping the zolinza medication. In reviewing the gene marker tests,
they determined that the cancer is over expressing her2 and that the levels have increased. The
medicine changes should take care of it. That is why I go in every 3 months...to have the
medicines adjusted and to have the doctors talk with me in detail about my health. So, it was a
good visit. I need to get a echo cardiogram and find out how my heart is doing as well. I feel in
good hands.
The biggest concern is one that I don't need to worry about....MONEY. The tykerb medicine is
the one that we don't get free from the manufacturer, and now I need to double the amount that
I take. So, it cost double the money. But, I know that the Lord will provide and that my job is to
take the pills and not be over concerned about the money or size of the tumors. Actually, the
doctor said that I am looking very good.
At first, after hearing that the tumors hadn't shrunk more, I started to be a little concerned. But,
then I prayed and got the reassurance from the Lord that all will be well and not to worry about
it. I know in my heart that everything will work out. my source of strength and has been with me
throughout this whole cancer adventure. I also know that through trials, great blessings are
received. Everything is going to work out as promised:)
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